• [ network ]
  • goatmatrix.net
  • gvid.tv
  • img.gvid.tv
  • games.gvid.tv
  • apps.gvid.tv
HomeUploadUpload DirectHotlinkRandomAbouttheme toggle
Expand

Dying Patients vs. the FDA: 'Right to Try' Laws Give Hope - And Time

Views:911
@ReasonVids

David Huntley was an Iron Man triathlete, a professor emeritus at San Diego State University, a father, and a husband.

In 2013, he was diagnosed with amyotrophic lateral sclerosis (ALS), more commonly known as Lou Gehrig's Disease. It's a death sentence given current science, but there are ways to combat the speed at which it progresses and the pain it causes.

Before he passed away on July 4, 2015 Huntley wanted to try a promising new drug called GM604, but it hadn't been approved yet by the Food and Drug Administration (FDA). So Huntley was denied access to GM604.

"How is keeping a potentially life saving drug saving my life?," said Huntley. "The decision to use an investigational drug to fight a fatal disease should be between a patient and his or her doctor."

Two years ago, The Goldwater Institute, a free-market think tank based in Arizona, designed a model bill for states that would allow terminally ill patients to go around the FDA approval process. The initiative is called "right to try."

So far, 23 states have adopted a version of right to try and 13 more are actively considering some form of the legislation.

It's too late for Dave Huntley, but will terminally ill patients in the future have an easier time getting access to experimental drugs?

About 5 minutes. Shot by Paul Detrick. Produced by Alex Manning. Music by Podington Bear.

Scroll down for downloadable versions of this video, and subscribe to Reason TV's YouTube Channel to receive automatic updates when new material goes live.

reason.com
,
reason.tv
,
reason.org
,
reason magazine
,
reason foundation
,
libertarian
,
fda
,
right to try
,
right-to-try law
,
health
,
drug approval process
,
food and drug administration (government agency)
,
goldwater institute (nonprofit organization)
    Thumbnail for John McCain on Boehner's Resignation, Kim Davis, Drug Legalization, Planned Parenthood10:31
    John McCain on Boehner's Resignation, Kim Davis, Drug Legalization, Planned Parenthood
    ReasonVids
    855 views
    Thumbnail for Why Millennials Hate Free Speech and What to Do About It53:03
    Why Millennials Hate Free Speech and What to Do About It
    ReasonVids
    1001 views
    Thumbnail for Why would any sensible Libertarian support abandoning Afghanistan to the Taliban?2:26
    Why would any sensible Libertarian support abandoning Afghanistan to the Taliban?
    ReasonVids
    888 views
    Thumbnail for Refrigerator Compressor Not Running: Diagnosis & Repair or Emergency Fix No More Spoiled Food | Genius Asian10:26
    Refrigerator Compressor Not Running: Diagnosis & Repair or Emergency Fix No More Spoiled Food | Genius Asian
    invidious
    535 views
    Thumbnail for Judge Alex Kozinski: From Communist Romania to the 9th Circuit Court of Appeals49:41
    Judge Alex Kozinski: From Communist Romania to the 9th Circuit Court of Appeals
    ReasonVids
    951 views
    Thumbnail for Joe Trippi: "If the GOP Picks the Tea Party as the Party of the Future, it's Over"0:51
    Joe Trippi: "If the GOP Picks the Tea Party as the Party of the Future, it's Over"
    ReasonVids
    898 views
    Thumbnail for Governments vs. Markets: Julian Morris on Environmental Protection28:37
    Governments vs. Markets: Julian Morris on Environmental Protection
    ReasonVids
    896 views
    Thumbnail for Based negress2:09
    Based negress
    bestofvoatxyz
    463 views
    Thumbnail for Red Cop / Blue Cop2:10
    Red Cop / Blue Cop
    ReasonVids
    1013 views
    Thumbnail for Remy: What Are the Chances? (An IRS Love Song) - LIVE2:34
    Remy: What Are the Chances? (An IRS Love Song) - LIVE
    ReasonVids
    1000 views
    Thumbnail for Why You Should Support Reason: Al Sharpton Edition0:31
    Why You Should Support Reason: Al Sharpton Edition
    ReasonVids
    900 views
    Thumbnail for Are Pro-Palestinian Students the Biggest Losers in the Campus Free Speech Wars?2:20
    Are Pro-Palestinian Students the Biggest Losers in the Campus Free Speech Wars?
    ReasonVids
    956 views
    Thumbnail for Obama's French Toast: Just Say Non3:03
    Obama's French Toast: Just Say Non
    ReasonVids
    928 views
    Thumbnail for What We Saw At The Anti-NSA "Stop Watching Us" Rally3:18
    What We Saw At The Anti-NSA "Stop Watching Us" Rally
    ReasonVids
    1052 views
    Thumbnail for Inside Sharknado 2: Mockbusters, Remix Culture, and the Earnestness of Camp4:09
    Inside Sharknado 2: Mockbusters, Remix Culture, and the Earnestness of Camp
    ReasonVids
    1026 views
    Thumbnail for Neuroscientist Carl Hart: Science Says We Should Decriminalize Drugs22:17
    Neuroscientist Carl Hart: Science Says We Should Decriminalize Drugs
    ReasonVids
    1021 views
    Thumbnail for Frederick Douglass vs. the 1619 Project5:33
    Frederick Douglass vs. the 1619 Project
    ReasonVids
    1066 views
    Thumbnail for Are You an Independent Thinker?  Try Reason!0:30
    Are You an Independent Thinker? Try Reason!
    ReasonVids
    967 views
    Thumbnail for Fetterman vs. Oz debate. Commentary by Mark Dice10:46
    Fetterman vs. Oz debate. Commentary by Mark Dice
    bestofvoatxyz
    1007 views
    Thumbnail for TLSOIW AND TRRPB (HATE SPEECH EDIT)40:31
    TLSOIW AND TRRPB (HATE SPEECH EDIT)
    murdochmurdoch
    1508 views
    Thumbnail for How Evolution Made Toads Behave like Crocodiles | Sciencephile the AI8:11
    How Evolution Made Toads Behave like Crocodiles | Sciencephile the AI
    invidious
    8 views
    Thumbnail for Resident Evil 6 Gameplay Walkthrough Part 3 - HEAVY RAIN - Leon / Helena Campaign Chapter 1 (RE6) | theRadBrad10:05
    Resident Evil 6 Gameplay Walkthrough Part 3 - HEAVY RAIN - Leon / Helena Campaign Chapter 1 (RE6) | theRadBrad
    invidious
    340 views
    Thumbnail for The GOP Civil War Over Libertarianism: Matt Welch at Reason Weekend 201322:38
    The GOP Civil War Over Libertarianism: Matt Welch at Reason Weekend 2013
    ReasonVids
    977 views
    Thumbnail for How California Could Have Avoided Its Epic Water Crisis3:43
    How California Could Have Avoided Its Epic Water Crisis
    ReasonVids
    946 views
    Thumbnail for Author Jeremy Lott on William F. Buckley Jr.'s Faith and Politics9:50
    Author Jeremy Lott on William F. Buckley Jr.'s Faith and Politics
    ReasonVids
    933 views

points

Permalink
Reply
reason.com
,
reason.tv
,
reason.org
,
reason magazine
,
reason foundation
,
libertarian
,
fda
,
right to try
,
right-to-try law
,
health
,
drug approval process
,
food and drug administration (government agency)
,
goldwater institute (nonprofit organization)
TOS  •  Add Keywords  •  Donate  •   Analytics  •   DMCA  •   Puzzle